Patient access to medical records and healthcare outcomes: a systematic review
- PMID: 24154835
- PMCID: PMC4078277
- DOI: 10.1136/amiajnl-2013-002239
Patient access to medical records and healthcare outcomes: a systematic review
Abstract
Objectives: We conducted a systematic review to determine the effect of providing patients access to their medical records (electronic or paper-based) on healthcare quality, as defined by measures of safety, effectiveness, patient-centeredness, timeliness, efficiency, and equity.
Methods: Articles indexed in PubMed from January 1970 to January 2012 were reviewed. Twenty-seven English-language controlled studies were included. Outcomes were categorized as measures of effectiveness (n=19), patient-centeredness (n=16), and efficiency (n=2); no study addressed safety, timeliness, or equity.
Results: Outcomes were equivocal with respect to several aspects of effectiveness and patient-centeredness. Efficiency outcomes in terms of frequency of in-person and telephone encounters were mixed. Access to health records appeared to enhance patients' perceptions of control and reduced or had no effect on patient anxiety.
Conclusion: Although few positive findings generally favored patient access, the literature is unclear on whether providing patients access to their medical records improves quality.
Keywords: Patient Access; Personal Health Record.
Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions.
Figures
Similar articles
-
Adult patient access to electronic health records.Cochrane Database Syst Rev. 2021 Feb 26;2(2):CD012707. doi: 10.1002/14651858.CD012707.pub2. Cochrane Database Syst Rev. 2021. PMID: 33634854 Free PMC article.
-
Patient Portals Facilitating Engagement With Inpatient Electronic Medical Records: A Systematic Review.J Med Internet Res. 2019 Apr 11;21(4):e12779. doi: 10.2196/12779. J Med Internet Res. 2019. PMID: 30973347 Free PMC article.
-
"Nothing About Me Without Me": An Interpretative Review of Patient Accessible Electronic Health Records.J Med Internet Res. 2015 Jun 29;17(6):e161. doi: 10.2196/jmir.4446. J Med Internet Res. 2015. PMID: 26123476 Free PMC article. Review.
-
Know me - a journey in creating a personal electronic health record.Stud Health Technol Inform. 2015;208:93-7. Stud Health Technol Inform. 2015. PMID: 25676954
-
Patients' online access to their electronic health records and linked online services: a systematic interpretative review.BMJ Open. 2014 Sep 8;4(9):e006021. doi: 10.1136/bmjopen-2014-006021. BMJ Open. 2014. PMID: 25200561 Free PMC article. Review.
Cited by
-
Internet Access and Use by Patients with Gynecologic Malignancies: A Cross-Sectional Study.Cancers (Basel). 2024 Apr 26;16(9):1677. doi: 10.3390/cancers16091677. Cancers (Basel). 2024. PMID: 38730629 Free PMC article.
-
The Effect of Using a Client-Accessible Health Record on Perceived Quality of Care: Interview Study Among Parents and Adolescents.J Particip Med. 2024 Apr 23;16:e50092. doi: 10.2196/50092. J Particip Med. 2024. PMID: 38652532 Free PMC article.
-
Reasons for Acceptance or Rejection of Online Record Access Among Patients Affected by a Severe Mental Illness: Mixed Methods Study.JMIR Ment Health. 2024 Feb 5;11:e51126. doi: 10.2196/51126. JMIR Ment Health. 2024. PMID: 38315523 Free PMC article.
-
Disparities in electronic health record portal access and use among patients with cancer.J Natl Cancer Inst. 2024 Mar 7;116(3):476-484. doi: 10.1093/jnci/djad225. J Natl Cancer Inst. 2024. PMID: 37930884 Free PMC article.
-
Unsolicited Patient Complaints Following the 21st Century Cures Act Information-Blocking Rule.JAMA Health Forum. 2023 Sep 1;4(9):e233244. doi: 10.1001/jamahealthforum.2023.3244. JAMA Health Forum. 2023. PMID: 37773508 Free PMC article.
References
-
- Schwappach DL. Review: engaging patients as vigilant partners in safety: a systematic review. Med Care Res Rev 2010;67:119–48 - PubMed
-
- Peat M, Entwistle V, Hall J, et al. ; PIPS Group. Scoping review and approach to appraisal of interventions intended to involve patients in patient safety. J Health Serv Res Policy 2010;15(Suppl. 1):17–25 - PubMed
-
- Koutantji M, Davis R, Vincent C, et al. The patient's role in patient safety: engaging patients, their representatives, and health professionals. Clin Risk 2005;11:99–104
-
- Hall J, Peat M, Birks Y, et al. Effectiveness of interventions designed to promote patient involvement to enhance safety: a systematic review. Qual Saf Health Care 2010;19:e10. - PubMed
Publication types
MeSH terms
LinkOut - more resources
Full Text Sources
Other Literature Sources