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. 2011 Dec;32(8):1132-8.
doi: 10.1007/s00246-011-0039-0. Epub 2011 Jun 28.

Quality of life experienced by adolescents and young adults with congenital heart disease

Flávio Miguel Teixeira  1 , Rosália Maria Coelho, Cidália Proença, Ana Margarida Silva, Daniela Vieira, Cláudia Vaz, Cláudia Moura, Victor Viana, José Carlos Areias, Maria Emília Guimarães Areias
Affiliations

Quality of life experienced by adolescents and young adults with congenital heart disease

Flávio Miguel Teixeira et al. Pediatr Cardiol. 2011 Dec.

Abstract

This study aimed to assess the quality of life (QOL) experienced by adolescents and young adults with congenital heart disease (CHD) and to determine which factors negatively affect adjustment and which factors increase resilience. The participants in the study were 74 patients with CHD (41 males and 33 females) ranging in age from 12 to 26 years (mean age, 18.76 ± 3.86 years). Demographic information and a complete clinical history were obtained. The participants were interviewed regarding topics such as social support, family educational style, self-image, and physical limitations. They responded to questions in a standardized psychiatric interview (SADS-L) and completed a self-report questionnaire (WHOQOL-BREF) for assessment of QOL. Compared with the Portuguese population as a whole, the study patients had better QOL, especially with regard to the environmental dimension (t = 3.754; P = 0.000) and social relationships (t = 2.333; P = 0.022). Patients who had undergone surgery experienced poorer QOL in the physical dimension (t = -1.989; P = 0.050), in social relationships (t = -2.012; P = 0.048) and overall (Mann-Whitney U = 563.000; P = 0.037). Social support played a positive role in the QOL of the patients, both in the physical dimension (t = 3.287; P = 0.002) and in social relationships (t = 3.669; P = 0.000). A higher school achievement also was associated with higher levels of QOL overall (Mann-Whitney U = 457.000; P = 0.046) as well as in the physical (t = 2.045; P = 0.045) and environmental (t = 2.413; P = 0.018) dimensions. Physical limitations had a detrimental impact on general QOL (Mann-Whitney U = 947.500; P = 0.001) and on the physical (t = -2.910; p = 0.005) and psychological (t = -2,046; P = 0.044) dimensions. Patients with CHD tended to perceive QOL as better when their social networks were supportive.

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References

    1. Eur J Cardiothorac Surg. 2009 Jul;36(1):105-11; discussion 111 - PubMed
    1. Eur J Cardiovasc Nurs. 2009 Jun;8(2):151-7 - PubMed
    1. Qual Life Res. 2006 May;15(4):663-73 - PubMed
    1. Pediatr Cardiol. 2001 Mar-Apr;22(2):128-32 - PubMed
    1. Dev Neurorehabil. 2007 Jan-Mar;10(1):27-33 - PubMed

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